The Angelman Syndrome is called a rare disease, in The Netherlands 10 to 15 children are born with this condition. The Nina Foundation is helping those children.

Main objective of the Nina Foundation is stimulation of research into the cause and treatment of the Angelman Syndrome. The second objective of the Nina Foundation is to endeavour and enlarge the knowledge of the Angelman Syndrome.

Next to those two objectives the Nina Foundation tries to combine all scientific knowledge and knowledge about the care and treatment of Angelman children. This knowledge we offer for free in our database and in a digital reader for parents, scientists and people who are interested in the Angelman Syndrome.

In practice the Nina Foundation achieves their goals by:

1. Financing of scientific research into the cause of the Angelman Syndrome
2. Realisation of the Expertise Center for Angelman Syndrome in the Erasmus MC Sophia Children’s Hospital in Rotterdam for the children with Angelman Syndrome
3. The gathering of the information in our database with the latest progress and scientific developments
4. The gathering of info about cures for children and adults with the Angelman Syndrome. This info is summarized in the digital reader about the Angelman Syndrome which can be downloaded for free
5. The translation to “normal” language of the most relevant info so that non-scientific people can understand it. This info can be found under the menu “Nina’s Journal”
6. Participation in events and helping local initiatives with the goal to generate financial support for the Nina Foundation and developing more awareness for the Angelman Syndrome
7. To divulge scientific research about the Angelman Syndrome to politicians.
8. The spreading of information about the Angelman Syndrome also internationally, through the website in as many languages as possible
9. The enlargement of the knowledge about the Angelman Syndrome and the Nina Foundation

The Nina Foundation is a fundraising organization and gets its funds through donations, subsidies and organization of benefit events. All publicity is sponsored.

The folder of the Nina Foundation contains a short explanation of the Angelman Syndrome, the activities and scope of the Nina Foundation. The folder is a PDF document and available in various languages. You can download it and print in A4 format.